Hi! I’m Tina! And welcome to my website and blog, ONE AUTOIMMUNE JOURNEY. I am so glad you are here! Please feel free to look around and contact me with any questions you may have. I am hoping you find valuable information, resources, and inspiration from each and every post that I share. WELCOME!
ABOUT ONE AUTOIMMUNE JOURNEY:
I started this blog space in September 2016 with the following MISSION:
Nowadays, there are so many spaces out there for people with autoimmune diseases or chronic illnesses to harbor negativity. I cannot remember how many Facebook groups I’ve been added to over the last few months that caused me nothing but heartache and despair. Yes, these are great places to ask questions, seek guidance, and find others that suffer from similar challenges; however, many times, the conversations turn to what most of us CAN’T do because of our illness, instead of what we CAN.
Well, I am here to change that.
First and foremost, as a fellow autoimmune disease and chronic illness warrior, I feel it is very important that we all must first understand the challenge(s) that we are dealing with. Whether we read motivational memoirs about others in similar situations or crack open a medical textbook or dictionary, the importance of doing our own research remains the same. WE must take control of our own CARE.
In my opinion, doctors and specialists only know so much about their specialized system. For example, if you visit a gastroenterologist, more than likely he/she will only be able to focus on specialized areas such as the esophagus, stomach, and intestines (to name a few). This is wonderful if those are the only problems you are experiencing. However, if you are like me and have system-wide and whole-body issues, this can cause a problem.
You see, in all my years of seeking help for autoimmune disease and chronic illness, I have not been able to find ONE doctor or specialist that can treat AUTOIMMUNE. They can treat the specialized problem in their field of expertise, but no doctor that I’ve found has ever been able to tackle this elephant in the room. This causes us, as patients, to hop around from specialist to specialist, only gaining care for one system at a time.
But what happens when autoimmune disease starts to snowball and take out each and every system in its’ path? How do we treat the underlying issue of autoimmune disease or chronic illness that is draining us of fatigue, causing us bouts of negativity, and creating a life that is hard to live? How do we change our mindset to live with these challenges instead of allowing them to control our lives?
Well, my friends, these are all great questions and ones that I’ve asked many times myself. And you know what I found? A whole lot of nothing. Granted, I have found a TON of information by doing my own research, but the facts still remain the same.
- I am still an autoimmune disease and chronic illness warrior.
- I still hop back and forth between doctors and specialists trying to manage my symptoms and problems.
- I still spend more time in doctors’ offices some weeks than I do at home.
- I still research as much as I can about my problems because I’ve realized that I am my own best advocate.
And you know what? That’s OKAY. I am here to tell you that it is truly OKAY to be SICK. It happens. Some are blessed with bodies that heal. Others are blessed with symptoms that improve with diet changes, new supplements, or the use of certain medications. But…where does that leave the rest of us?
Where does that leave those of us that do not heal?
I’ve had medical problems since I was 8 years old. Yes, 8. And for many, many years during my childhood, doctors had no idea why my body was doing the things it was. Autoimmune disease and chronic illness were not as prominent as they are today and even though I have many diagnoses for these problems now, I have multiple because they could not be treated back then.
And so, this blog space was born in an attempt to share my story while also sharing resources and information that has and hasn’t helped me along the way. I am not accepting defeat but I am realistic about my expectations. Autoimmune disease does not just go away. It doesn’t just magically heal overnight. Instead, I have learned to live with my limitations, change my lifestyle so I can still be successful, and refuse to allow medical challenges to bring me down.
I may have some days that are harder than others but my mission remains the same:
Welcome, my friends, and I truly hope you enjoy all this website has to offer.